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Ryan Reynolds Announces More to Parkinson’s® Campaign

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Ryan Reynolds Announces More to Parkinson’s® Campaign
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News

Ryan Reynolds Announces More to Parkinson’s® Campaign

2024-08-14 20:04 Last Updated At:20:21

SAN DIEGO--(BUSINESS WIRE)--Aug 14, 2024--

Ryan Reynolds, a world-renowned actor/entrepreneur and Parkinson’s disease advocate, with Acadia Pharmaceuticals Inc. (Nasdaq: ACAD) today announced the launch of a multi-faceted disease education campaign, More to Parkinson’s®, to raise awareness among caregivers, patients and their care providers about a common, yet under-recognized aspect of Parkinson’s disease – Parkinson’s-related hallucinations and delusions.

This press release features multimedia. View the full release here: https://www.businesswire.com/news/home/20240801386480/en/

Notably, around half of the people living with Parkinson’s disease may develop hallucinations or delusions over the course of their disease, but up to 90% of people currently do not proactively tell their physicians about these symptoms. 1-3 By sharing their experiences caring for Ryan’s father, James “Jim” Reynolds, who passed away nearly a decade ago, Ryan and his mother Tammy, aim to raise awareness, educate and drive conversation between people with Parkinson’s disease, their families and their doctors about how best to talk about and treat these non-motor symptoms.

“My father experienced hallucinations and delusions. At the time, we didn’t know any of these types of symptoms were part of his Parkinson’s disease,” Reynolds explains. “Like a lot of caregivers, my mom mostly tried to carry these burdens alone. I wish I’d known Parkinson’s disease wasn’t limited to only motor symptoms. I think people and families affected by Parkinson’s can be better prepared to manage hallucinations and delusions if they’re talking early and often about this lesser-known aspect of the disease.”

This press release features multimedia. View the full release here: https://www.businesswire.com/news/home/54103329/en.

“In my experience, most people living with Parkinson’s disease who experience hallucinations and delusions do not proactively tell their physicians about them unless specifically asked,” explains Dr. Yasar Torres-Yaghi, attending physician, director of Parkinsonism and Dementia Clinic at Georgetown University Hospital, Washington, D.C., a Parkinson’s Center of Excellence. “They may be frightened, embarrassed, or fear they are losing touch with reality. It’s important for people who are living with Parkinson’s and their loved ones to discuss all symptoms, motor and non-motor, with a doctor as there are treatment options available.”

More to Parkinson’s is an educational campaign, sponsored by Acadia Pharmaceuticals Inc., that aims to increase awareness among caregivers and patients of the existence of hallucinations and delusions as common parts of Parkinson’s disease. The campaign is anchored by a series of stories shared by Ryan and his mother, Tammy, as they relay their personal experiences from the perspective of a son and caregiver as well as a wife, mother, and caregiver, over the course of Jim’s disease. The multichannel campaign includes videos spanning a wide range of topics focusing on Parkinson’s-related hallucinations and delusions, covering who is at risk, what symptoms may look like, how to discuss symptoms and treatment options with a doctor, and more. The campaign will strive to reach the Parkinson’s disease community through digital media, social media and connected TV.

“There is a significant gap in awareness and understanding that hallucinations and delusions can be part of the progression of Parkinson’s disease,” said Steve Davis, Chief Executive Officer, Acadia. “As Ryan’s family story makes evident, the non-motor symptoms of Parkinson’s, including hallucinations and delusions, are often more distressing and disruptive than the motor symptoms associated with the disease. We are honored that Ryan and Tammy are willing to share their powerful story. Their experiences will open the door to desperately needed conversation and encourage people to speak with their healthcare providers about managing these symptoms.”

To learn more, visit MoretoParkinsons.com to find resources, including doctor and family discussion guides, and hear stories from people who have been affected by Parkinson’s-related hallucinations and delusions.

About Parkinson’s Disease and Parkinson’s-Related Hallucinations and Delusions

Parkinson’s disease is a progressive nervous system disorder that affects about one million people in the United States. 4,5 The signs and symptoms can vary with people experiencing both motor symptoms and non-motor symptoms such as hallucinations (seeing, hearing, or experiencing things that others don’t) and delusions (false beliefs). Physicians may refer to these Parkinson’s-related hallucinations and delusions as Parkinson’s disease psychosis. 3,6,8 Around 50 percent of people living with Parkinson’s disease may experience hallucinations or delusions during the course of their disease. 1 Non-motor symptoms, as a whole, can be more troublesome than motor symptoms, in terms of quality of life. 3 Parkinson’s disease psychosis may add to the burden of caring for a loved one with Parkinson’s disease. 9-11

About Acadia Pharmaceuticals Inc.

Acadia is advancing breakthroughs in neuroscience to elevate life. For 30 years we have been working at the forefront of healthcare to bring vital solutions to people who need them most. We developed and commercialized the treatment options for people living with hallucinations and delusions associated with Parkinson’s disease and Rett syndrome. Our clinical-stage development efforts are focused on treating, Prader-Willi syndrome, Alzheimer’s disease psychosis and multiple other programs targeting neuropsychiatric symptoms in central nervous system disorders. For more information, visit us at Acadia.com and follow us on LinkedIn and Twitter.

References

1 Forsaa EB, Larsen JP, Wentzel-Larsen T, et al. A 12-year population-based study of psychosis in Parkinson disease. Arch Neurol. 2010;67(8):996-1001.
2 Fénelon G, Mahieux F, Huon R, Ziégler M. Hallucinations in Parkinson’s disease: prevalence, phenomenology and risk factors .Brain. 2000;123(Pt 4):733-745.
3 Chaudhuri KR, Prieto-Jurcynska C, Naidu Y, et al. The nondeclaration of nonmotor symptoms of Parkinson’s disease to health care professionals: an international study using the nonmotor symptoms questionnaire. Mov Disord. 2010;25(6):704-709.
4 Parkinson’s Foundation. What is Parkinson’s? Retrieved from https://www.parkinson.org/Understanding-Parkinsons/Statistics. Accessed March 1, 2024.
5 Marras C, Beck JC, Bower JH, et al.; Parkinson’s Foundation P4 Group. Prevalence of Parkinson's disease across North America. NPJ Parkinsons Dis. 2018 Jul 10;4:21.
6 Ravina B, Marder K, Fernandez HH, et al. Diagnostic criteria for psychosis in Parkinson’s disease: report of an NINDS, NIMH work group. Mov Disord. 2007 Jun 15;22(8):1061-8.
7 Martinez-Martin P, Schapira AHV, et al. Prevalence of Nonmotor Symptoms in Parkinson’s Disease in an International Setting: Study using Nonmotor Symptoms Questionnaire in 545 Patients. Mov Disord. 2007; 22(11): 1623-1629.
8 Olanow CW, Schapira AHV. 2012. Parkinson’s Disease and Other Movement Disorders. Fauci AS (Ed), Harrison’s Principles of Internal Medicine (18th ed.).
9 Martinez-Martin P, Rodriguez-Blazquez C, et al. The Impact of Non-Motor Symptoms on Health Related Quality of Life of Patients with Parkinson’s Disease. Mov Disord. 2011;26(3):399-406.
10 Aarsland D, Bronnick K, Ehrt U, et al. Neuropsychiatric symptoms in patients with Parkinson’s disease and dementia: frequency, profile and associated care giver stress. J Neurol Neurosurg Psychiatry. 2007;78:36-42.
11 Schrag A, Hovris A, et al. Caregiver-burden in parkinson’s disease is closely associated with psychiatric symptoms, falls, and disability. Parkinsonism and Related Disorders. 2006;12:35-41.

Ryan & Tammy Reynolds (Photo: Business Wire)

Ryan & Tammy Reynolds (Photo: Business Wire)

NEW YORK (AP) — The Campaign Against Hunger was already struggling to feed thousands of families a week when the Trump administration pulled more than $1.3 million in grants.

Demand has only increased at the New York nonprofit since the city emerged from the COVID-19 pandemic and the related economic insecurity. In a first for the pantry, however, it isn't just the jobless lining up for its fresh produce and meats. It's working people, too.

Food banks typically see the most need during periods of high unemployment and yet the U.S. is facing down a hunger crisis during a relatively resilient labor market. The latest U.S. Department of Agriculture research showed there were one million more food insecure households in 2023 than 2022.

Now, income stagnation and rising living costs are sending wage earners to food banks across the country — all as the federal government shuts off funding streams that provide millions with healthier, harder-to-get groceries. The squeeze comes as Republicans discuss budget plans that hunger relief groups fear will deepen the crisis by slashing food stamp spending.

“We were already in a bad state. But now we have been plunged head down into a crisis that should never have been,” said Melony Samuels, executive director of The Campaign Against Hunger. “If major cuts like these continue, I would imagine that our doors will close.”

Funding cuts began threatening food availability in March.

The USDA halted $500 million of expected food deliveries and cut another $1 billion for hunger relief programs supporting local producers. The Department of Homeland Security also rescinded Federal Emergency Management Agency grants for local governments and nonprofits — including The Campaign Against Hunger — to shelter and feed newly arrived noncitizen migrants after their release.

“Secretary Noem has directed FEMA to implement additional controls to ensure that all grant money going out is consistent with law and does not go to fraud, waste or abuse, as in the past,” DHS Assistant Secretary Tricia McLaughlin said in a statement.

Samuels said her nonprofit is limiting normally bimonthly food distributions to once a month due to the lost funds, which are being withheld amid what she called “baseless allegations" from DHS that the nonprofit might have broken laws against transporting migrants in the country illegally.

That means fewer nutritious options for the dozens of people — some holding babies, many pushing carts — who recently waited to shop inside The Campaign Against Hunger's Brooklyn mock-store on an overcast weekday in April.

Longtime Brooklyn resident Kim Dennis has noticed the uptick in need. On top of her Supplemental Nutrition Assistance Program benefits, the 65-year-old retiree visits The Campaign Against Hunger twice each month for groceries like potatoes and pork chops that are more difficult to find at other food banks often filled with canned goods.

“The lines are getting a lot, a lot, a lot, a lot," Dennis said, partially due to recent immigration waves. “Everything is going up and a lot of us cannot afford."

Over half of responding food banks told Feeding America they served more neighbors this February than the same month last year.

Christiana Santamaria said she visits a local food bank in Alameda, California each week to feed herself, her husband and their daughter. They struggle to cover food costs, internet bills and car payments with a monthly household income of nearly $3,000.

“I mean, my husband, he works full-time. He has a quote-unquote ‘good job.’ But I mean, it’s the military. And if even the military can’t afford things, that’s sad," she said.

The country's largest hunger-relief network is also feeling the strain.

Feeding America consists of more than 200 member food banks. Their assistance is often easier to obtain than government benefits such as SNAP that some advocates say require burdensome applications. Many families put dinner on the table through a combination of the two — a strategy food bank leaders say could be upended if Republican lawmakers cut SNAP allotments or expand work requirements.

Houston Food Bank CEO Brian Greene expects his organization, which operates the largest distribution among Feeding America partners, to lose somewhere around $4 million this year.

The government pullbacks amp up that pressure. If the cuts stay, Greene said, the projected losses include $3 million for food storage and distribution, $7 million supporting local farmers and producers, and 40 tractor trailer loads a month carrying key produce and protein.

Greene is trying to make up the difference through donations. But he's realistic. Surveys consistently place American philanthropy around 2% of GDP and social services receive just a sliver of that. Even if charitable contributions spiked, he said, they couldn't replace federal support.

That makes SNAP availability even more critical to alleviating hunger. Cutting the program by 11%, he said, would be the equivalent of wiping out every food bank in the United States.

Food purchases are funded through the Farm Bill. Trump's trade war has also generated more money for USDA to buy food commodities under a 1935 program that dedicates tariff collections toward “bonus” food purchases.

What concerns hunger relief groups, however, is that the suspended purchases are covered by a different funding pot that allows the USDA great discretion when responding to economic disruptions. The first Trump administration put more than $2 billion of those funds toward The Emergency Food Assistance Program, or TEFAP. However, USDA is now reviewing $500 million allocated last fall for the program.

Federal commodities programs provide some of the most reliable supplies of proteins. Vince Hall, who leads government relations for Feeding America, said TEFAP-purchased foods account for more than 20% of everything distributed by the entire network. That number rises in rural communities — where the cost of reaching distant populations is higher and donated products are less available.

The impact trickles down to smaller pantries that rely on larger food banks. Mother Hubbard's Cupboard is bracing for about 25% food reductions from a Feeding America partner in Bloomington, Indiana.

“What we're likely to see then would be a dip in what are really the nutritional staples that we expect in the pantry,” said Mother Hubbard’s Cupboard President Megan Betz.

A 2022 study measuring food pantries' value suggests participating families obtain between $600 and $1000 annually from them. That's equivalent to a couple months of food for some low-income households, according to co-author David Just, an applied economics professor at Cornell University.

The centers helped cushion families from the pandemic's economic shocks. But food insecurity started rising as the government rolled back its pandemic-era assistance.

Need has surpassed the height of COVID-19, according to Alameda County Community Food Bank Executive Director Reggie Young. The weight of the Oakland nonprofit's annual food distributions has doubled its pre-pandemic totals.

Food insecurity nationwide is the highest it's been in about a decade, according to Just, making it “potentially a really difficult time to start cutting food assistance through the pantries.”

“This could cause some pretty significant pain,” he said. "And I don’t know that we’re delivering something more efficient in the end.”

Associated Press journalist Terry Chea in San Francisco contributed to this report.

Associated Press coverage of philanthropy and nonprofits receives support through the AP’s collaboration with The Conversation US, with funding from Lilly Endowment Inc. The AP is solely responsible for this content. For all of AP’s philanthropy coverage, visit https://apnews.com/hub/philanthropy.

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Church members pack groceries in van at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Church members pack groceries in van at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

A volunteer pulls box of produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

A volunteer pulls box of produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Alameda resident Beatriz Cortez picks up groceries at the Alameda Food Bank on Friday, April 25, 2025. (AP Photo/Terry Chea)

Alameda resident Beatriz Cortez picks up groceries at the Alameda Food Bank on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Volunteers pack produce at the Alameda County Community Food Bank in Alameda, Calif., on Friday, April 25, 2025. (AP Photo/Terry Chea)

Alameda resident Beatriz Cortez picks up groceries at the Alameda Food Bank on Friday, April 25, 2025. (AP Photo/Terry Chea)

Alameda resident Beatriz Cortez picks up groceries at the Alameda Food Bank on Friday, April 25, 2025. (AP Photo/Terry Chea)

Alameda resident Christina Santamaria stands outside the Alameda Food Bank with groceries and her daughter in Alameda, Calif. on Friday, April 25, 2025. (AP Photo/Terry Chea)

Alameda resident Christina Santamaria stands outside the Alameda Food Bank with groceries and her daughter in Alameda, Calif. on Friday, April 25, 2025. (AP Photo/Terry Chea)

People line up for groceries outside The Campaign Against Hunger's distribution center in the Brooklyn borough of New York, Tuesday, April 15, 2025. (AP Photo/James Pollard)

People line up for groceries outside The Campaign Against Hunger's distribution center in the Brooklyn borough of New York, Tuesday, April 15, 2025. (AP Photo/James Pollard)

Kim Dennis, 65, visits The Campaign Against Hunger's distribution center in the Brooklyn borough of New York, Tuesday, April 15, 2025. (AP Photo/James Pollard)

Kim Dennis, 65, visits The Campaign Against Hunger's distribution center in the Brooklyn borough of New York, Tuesday, April 15, 2025. (AP Photo/James Pollard)

The Campaign Against Hunger Executive Director Melony Samuels sits in her office in the Brooklyn borough of New York, Tuesday, April 15, 2025. (AP Photo/James Pollard)

The Campaign Against Hunger Executive Director Melony Samuels sits in her office in the Brooklyn borough of New York, Tuesday, April 15, 2025. (AP Photo/James Pollard)

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